abcnews: 106-year-old woman has priceless reaction meeting…

abcnews:

106-year-old woman has priceless reaction meeting President Barack Obama and First Lady Michelle Obama. “I thought I would never live to get in the White House, and I tell you, I am so happy!”

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““Beautiful things grow out of shit. Nobody ever believes that. Everyone thinks that Beethoven had…”

““Beautiful things grow out of shit. Nobody ever believes that. Everyone thinks that Beethoven…
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livingwithdisability: Wheelchairs are freedom. Every…

livingwithdisability:

Wheelchairs are freedom. Every journalist that uses “wheelchair bound”, needs to be bound by duct tape at the end of a ramp. *evil grin*

(Shared from 
Luis Nok Outumuro on fb)
 

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spoonie-living: annieelainey: Over and over I hear people talk…

spoonie-living:

annieelainey:

Over and over I hear people talk about certain products as though they shouldn’t exist, the ads for these items, are silly, I’ll admit, but the response is almost always aggressively “That is the laziest thing I’ve ever seen!!”, “I’ve lost my faith in humanity!” But if you really consider who could actually use these items, you’d see that are they not only unjustly called “lazy” but there are people in the world whose lives are made better by these products, who benefit from their existence! 

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[Image description: A video still of a person with blonde hair wearing a Harry Potter snuggie and lying in bed. This video is captioned.]

What a great and super important video. Annie highlights some really neat accessibility equipment, too, so be sure to take a look. And the next time someone calls out a snuggie, you can throw this in their face 😉

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livingwithdisability: Trabasack review spotted on an Australian…

livingwithdisability:

Trabasack review spotted on an Australian site. – trabasack sales support me so I can write this blog.  My partner invented it :-)

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My Fairly Ridiculous Crowdfunder Idea

cagglefrap:

Hello sexy, how are you?
Good. Sit on the comfy sofa, I have an idea I want to share…
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shitposting-sjw-garbage: prokopetz: prokopetz: pairinstability: ma-wile: pairinstability: Remem…

shitposting-sjw-garbage:

prokopetz:

prokopetz:

pairinstability:

ma-wile:

pairinstability:

Remem…
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RIP Bowie

RIP Bowie

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PSA

fireandwonder:

homojabi:

It’s trans, not trans*
It’s trans men and trans women, not transmen and…
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spoonie-living: incandescentblatherings: spoonie-living: spoon…

spoonie-living:

incandescentblatherings:

spoonie-living:

spoonsandstripes:

Sometimes I lose my appetite for days or weeks – even the foods I normally crave become as appealing as eating paper towels. It normally goes hand in hand with sensory issues with the food. These are some of the tricks I’ve learned to make sure I get enough nutrition anyway

  • The first and most important thing is you need to remember that eating anything is better than eating nothing. You may need to suspend your normal standards or rules – eating foods that are less “healthy” than normal, eating the same thing over and over gain, or just not enjoying your food as much.
  • Energy (calorie) dense foods like nuts or energy bars are really helpful, especially if the actual process of eating is unpleasant. Sometimes its really nice to be able to eat a meals worth of energy in under a minute
  • Chewing gum helps me get my appetite going – If I am trying to get myself hungry for a meal I will often start with gum 30-40 minutes before.
  • I rely a lot on eating a little of something I’m comfortable with to pique my appetite and moving to a different food group afterwards. Eating the first thing is always the hardest – I find after I start my brain realizes that food is ok and I can move onto larger portions or a different food.
  • When I eat something sweet I tend to crave more sugar later. So I use this to my advantage and have a small portion of something with some sugar in it and then wait to be hungry for more. Sometimes I will try to eat something a little more nutritious the second time, others I just have more of whatever was finally able to pique my interest
  • For the same reason consider other foods you find hard to put down. I’ve heard that things with both carbs and fat in them are the most “addictive” and I use that when I’m struggling to get enough to eat. It’s ok if this is a “junk” food – remember eating anything is better than eating nothing
  • Ginger tea or ginger chews make my stomach feel better
  • Keep track of your food. It can be really informal, like making sure you don’t skip meals, or it can be some other strategy of keeping a food journal or counting calories. You don’t need to be super precise, it just helps remind you to eat when your body isn’t sending the right signals
  • Look at “food porn.” Scrolling through a food blog you love on tumblr or watching a cooking show can be a good way to get your appetite going
  • Have a nutritional drink like an ensure can help you make sure you are getting all the nutrients you need without much thought. I find ensure is best very cold or on ice.
  • Look for foods or categories of foods that seem easier to tolerate than the others. This might be something you know is easy on your stomach, something of a certain texture, something hot/cold, or just a favorite food. 
  • If there is a food that you find less unappealing than the others, or feels “safe” to you go for it, even if you’ve eaten it many times in the last few days. I even find having eaten a food or meal in recent memory helps convince my body its not gonna be harmful

This is really helpful! As an addition I should mention that Ensure makes a dairy-free drink now, Ensure Active Clear Nutrition Drink. My housemate, also a spoonie, has learned through experience that it makes a great mixer if you run out of regular juice while drinking with friends :3

Also important: when you grocery shop, remember how you eat on your worst days. For me this means instant pasta and pre-cooked ham steaks; for my roommate this means lots of frozen dinners and the occasional bag of candy. (There has never been a time when I’ve found a Reeses Cup stored in the freezer unappealing.) 

When eating is hard, I frequently find the process of making a meal unrewarding.  By all means, load up with fresh fruits and veggies and make actual meals, but on days when that just isn’t possible, have be sure you have something you can shove into the microwave, something texturally pleasant you can eat out of a box, or an easy-to-prepare comfort food on hand. Keep protein bars by your bed and ramen in the cabinet. Hack your living space to make eating as intuitive and stress-free as possible.

[Image description: irregular pentagons in varying shades of green, with “Tips for eating when you have zero appetite” superimposed over the top.]

Loving these additions!!

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