Rave Dancers + Benny Hill Music = Hilarious
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Steve Jobs Memorial statue. It’s pretty horrible.
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My Personal Plea – Death By Indifference – ‘Justice for LB’
The young man in the video drowned in the bath during an epileptic seizure at 18.
A tragedy that did not happen at home but while he was staying at a £3,500 a week NHS care unit. Connor Sparrowhawk was meant to have one to one help and the unit had knowledge of his epilepsy but they thought it was ok to check on him every 15 mins.
Loved by his family and know as “Laughing Boy” (LB), Connor had learning difficulties, autism and as well as epilepsy. His death was entirely preventable, I just don’t understand how this could have happened in a specialist care and assessment unit. An independent report and the Care Quality Commission have produced damning reports about the unit:
“We conclude that the death of [Connor] was preventable… We found two broad areas where [Connor’s] care and treatment had failed significantly: his epilepsy care and the overall care provided by the unit.
“The failure of staff at the unit to respond to and appropriately profile and risk assess [Connor’s] epilepsy led to a series of poor decisions around his care – in particular the agreement to undertake 15-minute observations of his baths. The level of observations in place at bath time was unsafe and failed to safeguard [Connor].
“… The unit lacked effective clinical leadership and they operated a team-based approach in which no individual/s held the responsibility for ensuring that the care and management of [Connor] was appropriate and coordinated effectively. The impact of this was that standalone key safety decisions such as those pertaining to bath time observations were not validated by other professional colleagues.”
There is a very good analysis of the reports by Rich Watts here
There have been attempts to pass the blame and sideline what has happened by initially stating the death was due to ‘natural causes’, perhaps hinting at SUDEP.
I have followed some of the heartache and anguish that his family have been through since the tragedy happened on his mother’s blog. http://ift.tt/NasBke
My personal plea
My son has dravet syndrome, a learning disability and severe epilepsy.
As a parent of a disabled child, Connor’s death has saddened me and made me very angry. I am so scared for the future of my own son. I already know that if I am not around, then he is in danger. I know that I cannot leave him alone when he is in hospital as they do not have the staff to monitor his epilepsy. I have to make sure someone I trust, who knows his seizure pattern and medications is with him at all times. We do use respite units but I fear that when my son is 18 it will be much harder for me to have a say in where he goes or how he is cared for.
Caring for an epileptic child is a hard battle and every day you have to be vigilant. It wears you down. But you enjoy the good days and try to have hope for the future.
You just hope that one day when you are not around, there will be people who can look after him and will do their best for him. You hope that the end of your life, won’t mean the end of your child’s life.
Connor’s death shattered my hopes. I can’t bear to think that might be our future.
To know that you have spent years battling for your child and that someone will allow your child to die through indifference, and so soon after leaving home, is heartbreaking, soul destroying. I feel so deeply for LB’s family.
There has to be Justice for LB, for Connor, his family, for all disabled children, young adults and their parents, who are living in the hope of a happy and independent life.
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There may be up to 50 more planets IN OUR SOLAR SYSTEM!
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Trabasack February Newsletter – All the best from our blogs and websites
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